Bella Benefit. Benefitting Families Affected by SMA

Bella Benefit. Benefiting Families Affected by SMA: We are all connected in a very Unique way! Our daughter is now sweet angels taken by a horrible incurable disease called Spinal Muscular Atrophy, SMA type 1. Meet Addison Bella. SMA is a rare genetic disorder, babies born with this only have a life expectancy of age 2. Help us to spread our stories and make this world aware of this awful disease!!

Thursday, August 2, 2012

Race Flyer!

Posted by Jose and Valerie Trevino at 9:40 PM No comments:
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Jose and Valerie Trevino
Dallas/Fort Worth, Texas
We would like to spread awareness about the incurable genetic disease, which took our daughter Addison Bella's life called Spinal Muscular Atrophy. She had SMA type 1, the most severe of the 4. Most babies affected by the disease don't live to see their 2nd birthday. The ones who are affected and do live past their 2nd birthday are wheelchair bound, tube fed and most have a ventilator attached to... their chair at all times. Visit our Facebook page/facebook.com/bellabenefit
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  • ▼  2012 (20)
    • ▼  August (1)
      • Race Flyer!
    • ►  July (3)
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