Bella Benefit. Benefiting Families Affected by SMA: We are all connected in a very Unique way! Our daughter is now sweet angels taken by a horrible incurable disease called Spinal Muscular Atrophy, SMA type 1. Meet Addison Bella. SMA is a rare genetic disorder, babies born with this only have a life expectancy of age 2. Help us to spread our stories and make this world aware of this awful disease!!